Tiare’s Life Changing Opportunity

Product Description

Sydney, New South Wales, Australia

Supporters

It has been brought to our attention the processing fees for donations is quite high and increases with the value of your donation. Do get in touch either directly or through mutual contact if you want to avoid fees.

FUNDRAISING UPDATE: with direct donations, fundraisers and the Chuffed page, you have all manage to raise a staggering $104,179 so far! You are AMAZING! And we are so very grateful and have booked Tiare’s surgery fro late May.

*The tennis fundraiser has been postponed due to illness* Tennis – Ben from “What’s that raquet?” has organised Bring a Friend Day and a raffle. It is going to be FANTASIC!

Thermomix Raffle – $20 per ticket. Drawn 20th May, 2022.

A B I G T H A N K S to my little sis, Ebony Cameron, for organising this Thermomix raffle.

Brave Hearts Run –

A huge thanks to our friend, Lucy Vandermeer in WA, who is running a massive 42.2 km distance in Perth Bravehearts Marathon to raise funds for Tiaré. https://gofund.me/cd498d1b

Paradise Raffle – $10 per ticket (contact via Tiare’s Wish on FaceBook or see Kieran at The Sailor on Sailors Bay Road, Northbridge). Drawn on Saturday 16th April, 2022!!!

1st prize: A weekend stay at Hyams Beach. Enjoy ocean views out to Point Perpendicular and Bowen Island from the deck and living areas of this light and airy family beach home. A perfect place to rest and relax and enjoy one of the most beautiful beaches in Australia just 150 metes away. Sleeps up to 10 people.

More prizes:

Rodan and Fields pamper pack kindly donated by Rachel Mitchell

Chuck Wood Finska set, kindly donated by Jason and Lynette Petrie.

Also see below UPDATES for other current fundraisers including Strong Steps for Tiare, beeswax wraps, shanphelps earrings and recycling.

Tiaré’s Story

Tiaré was a bright, healthy, happy, and engaging three-year-old who loved swimming, ballet and gymnastics.

But a routine procedure to remove her tonsils and adenoids changed everything for Tiaré and our family. A viral infection at the time of Tiaré’s operation caused a rare neurological brain disease called acute necrotizing encephalopathy (ANE).

No one can prepare you for something like this. ANE is very aggressive and caused extensive damage to large areas of Tiaré’s brain. The illness and damaged it caused Tiaré’s brain was over and above the worse thing we could have imagined. Tiaré nearly died in ICU from brain swelling.

When Tiaré regained consciousness, she was unable to see, speak or move her arms and legs with purpose. It was so unexpected, incredibly frightening and broke our hearts to see our little girl had changed so much from one day to the next.

Slowly but surely, Tiaré made small improvements, giving us hope that Tiaré might one day be able to walk and talk again.

A highlight for Tiaré during her hospitalisation was meeting her favourite musician, Chris Martin. Chris was very kind and considerate, gifting Tiaré with presents, dedicating “magic” to Tiaré at his concert, lifting all our spirits and having we, her parents, at the concert as guests.

Tiaré’s “Cold Play” CDs were instrumental in her speech therapy sessions, helping her regain some speech.

How ANE Impacts Tiaré’s Life

Life is very different for Tiaré, now. The brain damage has severely affected her mobility, vision and communication.

Tiaré has spasticity in her legs. Spasticity prevents Tiaré from walking; her heels struggle to touch the ground, and her ankles are unstable. Tiaré relies on a wheelchair for mobility. As Tiaré grows, the spasticity can cause premature aging of her joints, pain, contractures and deformities.

Tiaré’s speech difficult to form but improving. Socially it has been difficult for Tiaré to keep up with the fluidity of play due to mobility, vision and communication difficulties. She is rarely invited to birthday parties. Teachers find it hard to transfer Tiaré, so at recess and lunch she often sits in her wheelchair while other school children enjoy the play equipment, instead of being able to actively participate. Tiaré often says “I wish I could walk”.

Tiaré’s ability to capacity build is limited by the reduction in function of her left hand and arm. Tiaré’s lack of functional vision restricts her learning and impacts on her ability to know where she is in space.

ANE has impacted our family financially, emotionally and physically. ANE has impacted our career choices, housing, the way we spend time with family and friends. ANE has impacted the availability and quality of time we can spend Tiaré’s little sister and has also taken from her little sister the abilities of her beloved big sister and playmate to interact, play, teach and protect her.

A Life-Changing Opportunity

Tiaré has just turned 9 and is at a critical point in her development where treatment will have the greatest impact on her life.

A combination of Selective Dorsal Rhizotomy (SDR) surgery and cord blood transfusion could change Tiaré’s future and give her the opportunity for much greater mobility, more functional use of her hands and arms, improved vision and less pain and deformities.

SDR surgery can give Tiaré the opportunity to live with less pain and more mobility by preventing the messages sent from her brain that causing spasticity in her legs. SDR results in improvements in sitting, standing, walking, and balance control in walking. Tiaré has been deemed appropriate for SDR surgery by British neurosurgeon, Mr Kristian Aquilina.

Another area of medical research that can improve Tiaré’s recovery is cord blood transfusion. Tiaré could gain access to a government cord blood study using blood type and HLA matched cord blood. The treatment will require two infusions and two trips to Russia 6 months apart for a week per infusion. Parents whose children have taken part in a Duke University (USA) study, with the same protocol, report their children have made physical gains outside of the normal progression for a child with their disability.

The improvements gained by children in these studies are relevant to deficits Tiaré has and could lead to improvements in her quality of life and access to education, community and friendships.

We hope Tiaré will receive her first cord blood infusion late November 2019.

With SDR surgery we are aiming for Tiaré’s legs to be free of spasticity pain, avoid deformity and to improve her posture. With cord blood transfusion we are aiming for an improvement in Tiaré’s functional use of her legs, left arm/hand, and her vision.

It is important Tiaré has the cord blood transfusion and surgery ASAP because this is a critical stage in her development when the treatment will have the greatest impact on her life. SDR surgery and cord blood transfusion promise the best return of function for Tiaré during this time. We are very excited at the prospects of the gains Tiaré can make during this important period of her development.

How You Can Help Tiaré

Any donation you can give will help to transform Tiaré’s life and be very much appreciated.

We need to raise $149,000 by September 2021.

This will cover SDR surgery in the UK including the pre and post-operative assessments, surgery, our stay in hospital and two weeks of intensive physiotherapy sessions.

It will also cover cord blood transfusion treatment in Russia which requires two infusions and two trips to Russia 6 months apart for a week per infusion.

Please share this page to spread the word and help us reach our goal.

If you can help in any other way, please contact us on [email protected]

UPDATES:

This brave kid got a cannula put in her arm for her blood test today and in preparation for her infusion of UCB! Getting close!!! We are all feeling so incredibly grateful for the opportunity!

Update:

The cord blood transfusions went well. Thanks for all the message of support and inquiry as to how Tiaré faired. So far Tiaréhas been a more chatty and wanting me to get her up to help her walk. Then wanting to walk really fast! We spent the afternoon doing therapy in the hotel. She had a small skin reaction to the sticky bandage. The principal investigator came to the hotel with topical antihistamine and the skin has improved. Here she is receiving her transfusion.

Update:

We returned to Australia from Samara, Russia. Tiaré has returned to school and therapy to take advantage of the benefits of cord blood infusion and brain plasticity. Tiaré’s Feldenkrais practitioner noted strong improvements with long sitting. Tiaré’s school physiotherapist noted continued improved sitting balance. The school physiotherapist also commented Tiaré’s left hand seems to be more open and she is taking more notice of her left side now. Tiaré’s speech therapist also saw lots of gains, which wasn’t a big surprise as Tiaré has a drive for speech, so I expect Tiaré’s drive would influence the benefits seen from cord blood infusion. Tiaré is currently doing 1hour OT intensive at NAPA with Laura before school each day, for a three-week period. It’s the first time Tiaré and Laura have worked together and we are very impressed with the knowledge and extra effort Laura has put into understanding Tiaré’s challenges. We can see Laura developing a lovely relationship with Tiaré and we look forward to seeing the gains they make together.

Some examples of Tiaré’s speech:

Ari getting ready go to Frozen 2. I’m going shopping. Let me do my thing.

Excuse me Dr Brown Bear, Tee-Tee really sick. Tee-Tee better… oh gooooood!

Doctor game for ages.

A for Arianna’s name.

UPDATE: May 2020

Thinking of all Tiaré’s supporters around the world. We hope you, your friends and families are safe and well. It has been a busy start to 2020. In January, the whole family went to Adelaide for Tiaré to train with a robotic (Lokomat) to capitalise on her first cord blood transfusion. We were impressed with the strength, endurance and coordination the Lokomat afforded Tiaré. After 3 weeks, Tiaré was able to train up to walk with the Lokomat 1.835 km, with a top speed of 1.6 km/hr.

Lokomat and HLA matched cord blood transfusion in combination with Tiaré’s regular therapy has been great for Tiaré’s hips, cardiovascular health, increase in strength of leg muscles, active stretch of leg muscles, improved control of torso, and head.

Since Tiaré had her first of two HLA matched cord blood transfusions, her speech, ability to sit nicely in a chair and ability to multitask has also improved. Tiaré can lay on her stomach comfortably on a scooter board, which is quite remarkable. Previously she was too uncomfortable; she would object and persist in rolling of until successful.

Tiaré sometimes stretches her left hand above her head when she is laying on her back stretching her right arm. Tiaré is improving her left arm exercises and engaging a bit more with left hand. Her right arm is extremely strong. Her right hand is showing improved dexterity.

Tiaré is also training towards using canes.

Tiaré’s masseuse said the texture of her muscles has improved. He was able to access between muscle he previously could not. Tiaré can long sit, left and right side sit and cross-legged sit independently. At present, Tiaré still needs assistance to be moved into these positions. Tiaré’s OT noted improvements with the muscles of the left arm (hand and arm more relaxed). Tiaré’s clonus (rhythmic muscle spasms in the lower leg) has also improved. We are really proud of Tiaré, all she has accomplished so far and the maturity with which she does it.

Tiaré is committed to her training and is continuing to gain strength. We have incorporated the Galileo Vibration plate to improve the strength and efficiency of Tiaré’s training. It is important for Tiaré to be strong before surgery. Tiaré is also able to count by 2s, 5s, and 10s with little prompt. We are also continuing to notice improvements in her speech.

At present, Tiaré’s international clinical trial and surgery are delayed for 6-12 months due to the international COVID-19 pandemic. With drought, bushfires, floods and now an international pandemic, fundraising has been very difficult. We are still doing our best and appreciated your support and interest in Tiaré’s Wish. If you are able to hold a fundraiser on Tiaré’s behalf, we would be very grateful.

Thanks for following, donating and sharing the link with your connection to Tiaré.

Current Fundraisers:

Tennis – Ben from “What’s that raquet?” has organised Bring a Friend Day and a raffle. It is going to be FANTASIC!

Paradise Raffle

$10 per ticket (contact via Tiare’s Wish on FaceBook or see Kieran at The Sailor on Sailors Bay Road, Northbridge).

Beeswax Wraps

I (Tam) have purchased lots of beautiful bright cotton prints and ordered all the constituents to make bees wax wraps. Bees wax wraps can be used in place of plastic cling film. They are ideal for wrapping sandwiches, cheese, half advocados, zucchinis, fruit, veggies, cruskits and so much more! Beeswax wraps can be cleaned the same ways as a placemat (soap, water, sponge) to be reused again and again!

‘shanphelps – Made With Love’

Tiaré’s wish is so excited to be launching a new fundraiser in conjunction with ‘shanphelps – Made With Love’!!! Shan has generously donated these beautiful earrings to Tiaré’s Wish

There are going to be some very lucky earring wearers! Prices $20 each. Contact Tam

Sponsor: https://shanphelps.com/made-with-love-shop/

Recycling fundraiser

Our friends Nat and Matty Cummings are working on a fundraiser using a recycled bottle and can scheme. Great for the environment and great for Tiare’s Wish. Here are the details!

Lupin Heat Packs

Lupin bags! Lupin seeds are lighter in weight than wheat, which is traditionally used for heat bags. When heated over time, wheat heat bags develop a “cooked” odour, whereas this is much less noticeable with lupin. Lupin bags retain heat longer than wheat. Although a little more expensive product than wheat, lupin seed is definitely a superior product. Use either warm or cold for relaxation. The Lupin bags are available for $30 for pick up in Sydney. The weight is 1kg. If you’re interested in paying for postage, Australia post packs up to 5kg are $9.20 each.

Date: 21.09.2020 – Still current

Sydney Morning Herald Half Marathon:

Scott Crank has helped us get a team of great runners training hard in preparation for the SMH Half Marathon. We are grateful to have Scott Crank, Heath Parkin, Todd Parkin, Matt Cameron, Ryan Peel, Ian North, Chris Cockerill, Josh Mickle and Sally Shaw. We are currently sourcing a charity to help us with handling the funding.

Date: CANCELLED DUE TO COVID 19

Tiny Toes Ballet School 10 year anniversary concert:

Organised by Rebecca, John and the tiny Toes Ballet team. This year Tiny toes ballet celebrates 10 years and will be holding a celebratory concert for all current and former students and teachers. All proceeds will be donate to help Tiare with her surgery.

Date: CANCELLED DUE TO COVID 19

HAPPY CRAFTERNOON

Thanks for stopping by. We have an online HOMEMADE market stall for for Tiaré’s Wish.

Fabric Face masks $15 ea

Supporter T-shirt $25 ea

Date: current

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We would like to thank the following businesses for displaying “Tiare’s Wish” fundraising poster:

Aristotle’s Neutral Bay Resturant (Sydney)

Sloans of Lane Cove Hair Salon (Sydney)

SXL gymnastics (Sydney)

The Owls cafe Northbridge (Sydney)

Penfold Winery Cellar door (Barossa Valley)

Maggie Beers Eatery (Nuriootpa)

Bakery on O’Connell (Adelaide)

Yates Physiotherapy (also for treating Tiare for free when we are in Adelaide for her to use the Lokomat robotic).

Norwood Swim School (Adelaide)

Keswick Cafe (Keswick army base, Adelaide)

The Libertine, by Louis (Adelaide)

Platium Effect Hair Studio (Maffra)

Amberlea’s Elegant Images (Maffra)

———-

Past Fundraisers:

HIGH TEA Fundraiser $10,875.50

My Aunty Kaz (Daryl Mclachlan), Mum, Sisters Ebony Cameron and Amberlea Ryan, Aunty Chrissy and Aunty Sheryl Traill succeeded in creating a tasty afternoon tea, helped by many friends and family. Nana Eil’s sponge cakes were a hit!

Thank you kindly for your most generous donations and contributions you made to make the day a success. Much gratitude to the sponsors of the raffle prizes, silent auction and lucky door prizes. The sponsors were:

Harvey Norman Traralgon

Push ‘N Pedal Bicycles Sale

Findlay and Weymouths Pharmacy Sale

Mode Flooring Sale

Maffra Showcase Jewellers

Simic’s Betta Home Living Sale

Platinum Effects Hair Studio Maffra

Amberlea’s Elegant Images Beauty Salon Maffra

Osmosis Gippsland Centre Sale

Intimo clothing Brooke Barbar

David’s menswear Sale

Tinamba Hotel

Maffra Community Sports Club

Len’s carpet cleaning Maffra

Spotlight Traralgon

Woolworths Maffra

Coffee House Maffra

Schuback Shoes Sale

Fever Maffra

Portside Food and Wine Sale

La Porchetta Sale

Stobies Mensland Maffra

Marion Stothers Hairdressing

Pickle Pot Maffra

Brown and Wigg Sale

Saddle world Sale

Sale Farm and Equine

Stratford IGA

House Proud Sale

Neutramedics Sharron Foley

Maffra Newsagency

Maffra Floors and Mats

Blumers Sale

Stratford Hotel

Wilmour Motors Maffra

Jump and Climb Traralgon

Stratford Post Office

Thai Grocery Stratford

Lauren McQuillen

Narelle Gray

Sharron Carrol

Irene Wright

Lynn Fox

Karen and Darryl McLachlan

Lilly Appleton

Neville Chambers

Tamara De Boer

Wendy Eppelston

Joan Kewish

Cheryl Veal

Allison Willow

Chris Ronalds

Kristen O’Shea

Sydney by kayak raised an additional $2,032

The North Sydney Brothers Leagues Club raised $8,500

We are so very grateful to Daniel Dickson and Laurie Daley of The North Sydney Brothers Leagues Club (https://nsbrothers.com.au) who recently held an Origin Lunch 2021 and auctionwith some of the funds going towards Tiaré’s SDR surgery and presented it to her at The Sailor Bar & Kitchen in Northbridge.

Sydney By Kayak raised $915

Sydney by Kayak hosted a fundraiser for Tiaré’s wish on Tuesday 30th November, 2021. Paddling in the harbour watching the sun rise with the Sydney Harbour Bridge and Opera House in view and fresh coffee in hand – what more can you ask for?

Sydney by kayak have been organising kayak tours from Lavender Bay for 6 years and they truly are spectacular. Ben and Laura Stone also very generous and donated one of their kayak tours as a first prize for the winner of our Finska tournament and couple more vouchers for our Tiare’s Wish raffle. We are very grateful.

Stromlo Running Festival

The official event was cancelled, but our running warriors didn’t shy away from representing. We had Annie and Ian North, John, James Ellis-Smith, Raf Oort, Sally Shaw and Josh (Tiare’s Daddy). These running warrior ran in rain and through mud to stick to their goal and put in ALL the hard work and training that goes into preparing for this type of feat!!! We are so very grateful for your determination, fundraising and family support.

Mango Fundraiser 2021

Mum’s night out

My wonderful friend, Liv Laws, organised a “Mum’s night out” in Brisbane. We hope Liv and all the generous ladies who joined her had an amazing night. The Mum’s night out raised $350 for Tiare’s wish.

UTA22 run by Josh (Tiare’s Dad) here is his take

“UTA22 done and dusted! It was a great course with alot of stairs. I did suffer alot of quad cramping about 12km in, something that doesn’t usually happen to me very often. Thank goodness i got through. I must say it was quite emotional going through some areas as they were where we visited as a family just before Tiaré fell ill. It did give me some drive to get things done. I finished the course in just over 4 hours.” Your support for Josh running the UTA raised $2480

The Canberra Times Marathon, April 11th 2021

Our wonderful friends, Ian North and Annie North (with a pram), ran events at The Canberra Times Marathon in support of Tiaré’s wish. We are very appreciative of the hard training and the juggling of life involved in order to fit the training and Marathon to raise funds and promote awareness of the fundraising.

Bees wax wraps

Photography fundraiser

Tiaré’s Wish received a very generous $2275 donation from Naremburn Early Learning Centre from a fundraiser they held for T. Jake (the director) and Durrah (teacher and the photographer) organised to do the childrens photos in-house last year, instead of using an external company, which meant they were able to donate a sizeable amount of funds to Tiaré’s Wish, without any extra out of pocket to the families. So clever! We are super grateful for the amazing support Naremburn ELC has provided Tiaré’s Wish. What an incredible bunch of people. They are also collecting drink bottles and containers for the recycling fundraiser! Here is a photo of the gorgeous group:

Kirribilli Market Fashion Stall:

Sophie Collis, Jo Quagliata, Olivia Moore and Anna organised and ran another fashion stall. This time around we raised $810

Date: 27th March, 2022

Sophie Collis, Jo Quagliata and I ran a fashion stall Sunday 8th November and Sunday 6th December. We sold some brand new clothes with tags and others lightly used.

Mango Fundraiser

Kirribilli Market Fashion Stall:

Sophie Collis, Jo Quagliata and I ran a fashion stall. Lots of great quality clothes were donated for Tiare’s wish. Some brand new with tags and others lightly used. We raised $1440

Date: 13th September, 2021

Beeswax Wraps

I (Tam) have purchased lots of beautiful bright cotton prints and ordered all the constituents to make bees wax wraps. Bees wax wraps can be used in place of plastic cling film. They are ideal for wrapping sandwiches, cheese, half advocados, zucchinis, fruit, veggies, cruskits and so much more! Beeswax wraps can be cleaned the same ways as a placemat (soap, water, sponge) to be reused again and again!

Date: August 2020 – the first batch has sold out already! Profit ~$200. Another batch soon to come!

Ian North trained to run the SMH half marathon. Despite the official event being moved to November, Ian maintained his disciplined training and completed the appropriate distance to raise over $3000 for Tiaré. Thanks to Ian, the whole North family and support network.

“Bean there, Drank that” coffee carvan – fill the cup campaign raised $570.30.

The generous ladies, Bron Tatterson Connelly and Bec Mair, at “bean there, drank that” Maffra have choosen Tiaré as their funding recipient for the month of March. If you see their business, please support them and send our love. https://www.facebook.com/Bean-There-Drank-That-1757152294517123/

Mental Health first aid course

Our incredibly compassionate and intelligent friend, Lou Pitcher, conducted a First Aid accreditation for Mental Health. Lou is a qualified Psychologist and has loads of experience, including working in the Australian Defence Force. Lou donated all profits to Tiaré’s wish. We thoroughly recommend taking one of Lou’s Mental First Aid courses. You will be well looked after by one of the best. The course will help you take care of yourself and your loved ones.

Aristotle’s Neutral Bay $100 restaurant voucher auction.

The owner, a beautiful lady named Maria, gave us a voucher for Tiaré’s wish fundraising off her own initiative. We received great service from Maria, Stuart MacGill (the general manager and famous, Australian cricketer) and they have also happily agreed to display a fundraising poster in their beautiful restaurant. Aristotle’s Neutral Bay Resturant is the winner of 2019 Most Outstanding Resturant on the North Shore of Sydney.

“One million women” fundraiser for Tiaré’s Wish…. good for the planet, good for Tiaré and wonderful to catch up with some of my lovely friends. We also appreciate the gorgeous fashion donated and our friends who came and supported Tiaré’s Wish. Thanks for your help, Sophie Collis.

Ridge Walker Raffle

Thank you kindly to Justin Larres, based in the USA. Justin is a kind soul who heard of Tiare’s Wish to walk and decided to start of the year doing something good. He organised a raffle through his business “Ridge Walker”. We hope to meet Justin and his family one day.

Wyvace Woodworking Raffle

The very generous Jennifer at Wyvace Woodworking in USA organised a raffle for Tiaré’s wish. Jennifer is a friend of Justin and another kind soul we would like to meet!

The Fashion Swap at North Sydney Demonstration School Hall.

Run by Sophie Collis and Jo Quagliata.

Lots of clothes were swapped and exciting silent auction items were auctioned including:

$500 dog-staycation from Boutique Pet Retreat Homemade Christmas Cake by Anne Bedwani Two timber chairs by botton and gardiner Two Ottomans by botton and gardiner

Tiny Toes Ballet School Frozen 2 Fundraiser:

Tiny Toes Ballet School took some of there ballerinas to watch Frozen 2. Run by the ever supportive Rebecca Kidner.

We hope the dear little Tiny Toes ballerinas had a wonderful time at Frozen 2!

Thank you kindly to all the supporters who attended the Frozen 2 and Fashion Swap fundraisers. We also appreciate the online donations, too.

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A message of gratitude from Tiaré

Stephane Hetroy

7 months ago

$600

Scott Crank

1 year ago

$500

Mitch and Nat Bywater

1 year ago

$200

Phillip & Jackie brown on behalf of Chris Bennett

1 year ago

$500

Marie and Alistair Kelsey

1 year ago

$100

Matt and Ef On behalf of Chris Bennett

1 year ago

$300

Craig Duthie

1 year ago

$500

Michael Keefe

1 year ago

$50

Megan Mynott

1 year ago

$100

Anonymous

1 year ago

$50

Nicole Huth

1 year ago

$25

Lois Ryan

2 years ago

$200

Jules Tushuizen

3 years ago

$50

Sylvia Barton

3 years ago

$1000

Anonymous

3 years ago

$50

Carl & Rachel Fennessy

3 years ago

$500

Jules Hohnen

3 years ago

$100

Phil Taulelei

3 years ago

$50

Anonymous

3 years ago

$2365

Anonymous

3 years ago

$25

Chloe G

Well done team North

5 years ago

Tam Johnston

@Chloe G we are blessed to have Team North supporting us!

5 years ago

Amanda Mundy (Wright)

All the absolute best Tam. X

5 years ago

Tam Johnston

@Amanda Mundy (Wright) very kind xoxo Thank you so much!

5 years ago

Bec & Bron Bean there drank that

#whereloosechangemakesadifference

5 years ago

Tam Johnston

@Bec & Bron Bean there drank that It certainly does! Thanks for your support!

5 years ago

Kelly Swindail

Wishing your sweet family all the luck in the world and that you reach your target even with the cancellation of the the running events.

5 years ago

Tam Johnston

Thanks so much @Kelly Swindail . It’s certainly a tough time to be fundraising. We really appreciate your support!

5 years ago

Luke Spencer

Always happy to support such a worthy cause especially when coupled with such an amazing opportunity as the course offered by Louise as a part of it.

5 years ago

Tam Johnston

Thanks so much for your generosity @Luke Spencer . Louise is amazing and we are very grateful for her sharing her talents to raise money for Tiaré.

5 years ago

Scott Watson

Good luck guys! You are an inspiration to us all and we wish Tiare all the best for the future!

5 years ago

Tam Johnston

Thanks so much @Scott Watson! We really appreciate your support and encouragement.

5 years ago

Kerrie Millier

All the best love Kerrie and Kev

5 years ago

Tam Johnston

Thanks so much @Kerrie Millier and Kev. Wishing you a very happy birthday

5 years ago

Rod Baker

Good luck and we hope everything goes well.

5 years ago

Tam Johnston

Thanks so much @Rod Baker. We really appreciate your support.

5 years ago

Yemi Aguda

Great to hear about the progress that Tiare has been making. Hope she’s able to continue with these life changing treatments with big improvements in 2020. Love to you all. Yemi.

5 years ago

Tam Johnston

Very kind @Yemi Aguda. Thanks so much for your support. Sending love to you and your family.

5 years ago

Anonymous

All the best and I will be following her progress. Can’t even imagine what you are all going through and our prayers are with you.

5 years ago

Tam Johnston

Thank you kindly @Anonymous. We are grateful for Tiaré’s progress. The effect ANE had on Tiaré certainly broke our hearts. Tiaré has a wonderful attitude and personality and brings us joy everyday

5 years ago

Anonymous

Wishing you all the best Tiare. Sending you much love from my family to yours.

5 years ago

Tam Johnston

Very kind @Anonymous. We appreciate the love and support you send.

5 years ago

Jane Thorpe

All the very best. Holding the intention of seeing Tiare walk and then run… ❤️ Big Love xxx

5 years ago

Tam Johnston

Thanks so much for your @Jane Thorpe. We hold these goals close to our hearts

5 years ago

Jo Cortese

Wishing your daughter a full recovery and I’m sure you will raise more then enough to do this. ❤️

5 years ago

Tam Johnston

Thank you kindly @Jo Cortese. A full recovery would be wonderful. We appreciate your support!

5 years ago

Anonymous

Good luck!!

5 years ago

Tam Johnston

Much appreciated @Anonymous

5 years ago

Anonymous

Hope this small donation helps. Best.

5 years ago

Tam Johnston

@Anonymous absolutely! All donations are appreciated and help Tiaré get treatments to improve.

5 years ago

Tam Johnston

Thank you

5 years ago

Tara Wilson

I am so touched by reading your story and can’t imagine how hard this is to see your child in pain. I wish you all the best Tiare and hope the family reaches their goal to get the best treatment for Tiare. Hugs.

5 years ago

Tam Johnston

Thank you kindly @Tara Wilson. We appreciate your support and empathy. The tragedy of Tiaré’s illness and subsequent disabilities shocked us all and broke our hearts.

5 years ago

Jennifer Foat

My heartfelt best wishes to you all but especially Tiare for a life with fun, happiness and adventure xoxo Good luck little one

5 years ago

Tam Johnston

Thanks so much @Jennifer Foat. Beautiful words for my sweet Tiaré. With all Tiaré endures, she is still one of the happiest and best people I know!

5 years ago

Belinda Laughlin

All the best. Love from friends of Lily and Sukie Collis x

5 years ago

Tam Johnston

Thanks @Belinda Laughlin. We appreciate your support and love your little friends Sukie and Lily Collis

5 years ago

Paul and Paula Guinane

Such I beautiful little girl, my thoughts are with Tiare and her amazing family

5 years ago

Tam Johnston

@Paul and Paula Guinane very kind. Thanks for your support!

5 years ago

Memphis Killoran

Go Tiare x

5 years ago

Tam Johnston

Thanks @Memphis Killoran. We love watching videos of your progress. You are another inspirational little person ❤️

5 years ago

Brendan and Andrea Lambrecht

Wishing you all the best x

5 years ago

Tam Johnston

@Brendan and Andrea Lambrecht so lovely to hear from you guys! Thanks for your support

5 years ago

Anonymous

Good luck Tiaré, you are an inspiration!

5 years ago

Tam Johnston

Very kind @Anonymous . Thanks so much for your positive comment and support

5 years ago

Sue Bumpstead

Sending you lots of hugs Tiare’. We hope your next treatment brings great results for you & your family. Love Sue & Alan xx

5 years ago

Tam Johnston

Thanks so much @Sue Bumpstead, We appreciate your hugs, love and support xoxo

5 years ago

Anonymous

I’m so glad to see your little girl making such big improvements. She is so strong. Keep up the good work.

5 years ago

Tam Johnston

Thank you kindly @Anonymous. We really appreciate your positive comments and generous donation. It’s incredible to think when T first got ANE she could not even lift her face up off the fit ball! You’re right, she is so strong now!

5 years ago

Hana Shockley

Go Tiare!! Sending you lots of love from Kaiden and his family xxx

5 years ago

Tam Johnston

@Hana Shockley & Kaiden thank you kindly. We really appreciate your support xoxo

5 years ago

Rosa Capel

You’ve got this, T

5 years ago

Tam Johnston

@Rosa Capel thanks so much, Rosa. Your support is very much appreciated xoxo

5 years ago

Kaili and Alia Metani

Loads of love from Alia and Kaili xxx

5 years ago

Tam Johnston

@Kaili and Alia Metani you guys are wonderful xoxo Sending much love. We love watch clever Alia overcome her challenges, too xoxo

5 years ago

Sara Allen

Sorry Taire – spell check 🙁

5 years ago

Sara Allen

Tiare- got it 🙂

5 years ago

Tam Johnston

@Sara Allen Haha… the spell-check and Siri always try to change the spelling!

5 years ago

Sara Allen

Tiara, you are a superstar. Your strength, determination and courage is amazing.

5 years ago

Tam Johnston

@Sara Allen thanks so much for your support and donation. We miss you guys xoxo

5 years ago

Lois & Paul Ryan

All the best for future progress Tiarè.

5 years ago

Tam Johnston

@Lois & Paul Ryan thanks so much xoxo We appreciate your love, support and donations.

5 years ago

Anonymous

Thanks for sharing your journey with us! Big loves

5 years ago

Tam Johnston

Our pleasure @Anonymous . Thanks for joining us and being part of Tiaré’s support network!

5 years ago

Teresa McMichael

Go Tiare, all the best! Love from Teresa, Jesse, Sam and Josh xo

5 years ago

Tam Johnston

@Teresa McMichael Jesse, Sam and Josh thank you all so much! We really appreciate your support!

5 years ago

Anonymous

From your anonymous friend on Facebook. God Bless & Get Well Soon Tiara

5 years ago

Tam Johnston

So kind @Anonymous . Very good of you to reach out and offer assistance.

5 years ago

Crank Triplets

Dear Tiare, We love you and wanted to share with you the birthday money we received this week. You are an incredibly brave little girl and we are cheering for your continued progress! Heaps and heaps of hugs and kisses, Arzak, Caspian and Winston Crank xxx

5 years ago

Tam Johnston

@Crank Triplets Please thank your boys very much for the very generous donation of their birthday money to Tiaré’s fundraising. It is a very kind and generous gift. You guys are doing wonderful parenting there!

5 years ago

Rebecca Elston

I’ve followed Tiare’s story since her illness. She has made amazing progress and is clearly a strong and determined little girl with an incredible family that are doing everything possible to help her reach her potential. I look forward to seeing her progress even further in the future ❤️

5 years ago

Tam Johnston

Thank you so much @Rebecca Elston . We appreciate your kind words and support. We feel very honored to be Tiaré’s parents and be so involved in her journey.

5 years ago

Karly West

If you are able, please donate to help this amazing little girl on her mission to walk again. She is certainly a little warrior.

5 years ago

Tam Johnston

@Karly West thank you so much for donating and supporting Tiare. Sending our best wishes to you and your family xoxo

5 years ago

Sarah Bachmann

You are a huge inspiration, hope everything goes well. Xxx

5 years ago

Sarah Bachmann

You are a huge inspiration, hope everything goes well. Xxx

5 years ago

Tam Johnston

@Sarah Bachmann Thank you for your support and good wishes!

5 years ago

Anonymous

Good luck Tiara you are such a brave little girl, my best wishes and thoughts are with you

5 years ago

Tam Johnston

@Anonymous Thank you so much for supporting our brave Tiare.

5 years ago

Jessica Luciani

What a great cause to get behind. Best wishes to Tiare. She has already achieved remarkable results and I am happy to support the possibility of more. I encourage everyone to get behind this beautiful sole.

5 years ago

Tam Johnston

Thank you kindly, @Jessica Luciani. We really appreciate your support for Tiaré. We think she is remarkable, too xoxo

5 years ago

Klara H

Lots of love to a very special little girl. Wishing you more and more strength every day xx

5 years ago

Tam Johnston

Lots of love to the sweet girl @Klara H from Tiaré. Thanks for your support and friendship!

5 years ago

Tam Johnston

Lots of love to the sweet girl @Klara H from Tiaré. Thanks for your support and friendship!

5 years ago

Kim Warren

Big hugs xxxxxxxxxxxx. Best of luck with the fun raising.

5 years ago

Tam Johnston

Thanks so much @Kim Warren . We appreciate your kind wishes and support xoxo

5 years ago

Carmen Lawton

We love and miss you Tiare! Sending you and your Mum and family big hugs! Xoxo

5 years ago

Tam Johnston

Thanks so much @Carmen Lawton. Thinking back to when our big girls were little and around our ankles playing together! Sending you and your family big hugs, too!

5 years ago

Jason Comarmond

Tiare, I will always back a warrior!! Keep fighting girl xx

5 years ago

Tam Johnston

Thanks so much @Jason Comarmond. Tiaré trains like a warrior. Lots of sit ups and other strength exercises. We appreciate having you and your family on her side

5 years ago

Tammie King

I’ve always believed you’ll get stronger & more capable by the day Tiaré. You’ve got this! Go shine✨

5 years ago

Tam Johnston

Thanks so much @Tammie King . Tiaré is certainly working hard. Looking forward to seeing Tiaré further progress with the up and coming treatments and surgery

5 years ago

Rachel Tomanek

I’m so sorry to hear this has happened to poor tiare! Wish you all the best in raising the money and getting a better quality of life x

5 years ago

Tam Johnston

Thanks so much @Rachel Tomanek . We appreciate your support and kind wishes for Tiaré xoxo

5 years ago

Emma Georgeson

Sending you all over very best wishes and uplift for this next stage of Tiaré’s journey xx

5 years ago

Tam Johnston

Thanks so much @Emma Georgeson. We appreciate your support. Hope you and your family are doing well xoxo

5 years ago

James Ellis-Smith

Good luck Miss Tiarè!!! You are always in our hearts and we are sending lots of love to you for this courageous journey!!

5 years ago

Tam Johnston

Thanks so much @James Ellis-Smith Thanks so much for your love and support for Tiaré. Tiaré certainly enjoyed catching up with you and the fam in winter!

5 years ago

Anonymous

I was so touched by Tiare’s story and wish her all the very best for this long journey ahead. May she recover well and have good progress. Sending your family strength and courage to get through this. Our thoughts are with you all!

5 years ago

Tam Johnston

@Anonymous Thank you so much for your kind wishes and support. Very feel uplifted by your message xoxo

5 years ago

Rebecca Kidner

With all the love and wishes in the world for Tiare to have a better life (and her family.) We will spread the word! Lots of love from all of us here at Tiny Toes Ballet xxxxxxx

5 years ago

Tam Johnston

@Rebecca Kidner you and the Tiny Toes Team have been an incredible support to us all right from day one with hope, love, gifts, support and welcoming Tiare back to ballet in a very inclusive manner xoxo

5 years ago

Tam

Jo Quagliata

Josh Johnston

Laura Edwards