Macy’s Fight Against GACI

Product Description

Melbourne, Victoria, Australia

Supporters

Macy’s Fight Against GACI Macy is a gorgeous baby girl with the most perfect smile.

On Monday the 9th April, Macy was admitted to the Intensive Care Unit (ICU) at the Royal Children’s Hospital in cardiogenic shock, with an enlarged heart. She was intubated (placed on a breathing machine), and after several tests Macy’s parents, Kate and Jason, received the news that she has an incredibly rare genetic condition known as GACI (Generalised Arterial Calcification of Infancy, also called IIAC- Idiopathic Infantile Arterial Calcification). Macy’s parents were initially told that nothing could be done to save her and they prepared to lose their first and incredibly precious child.

Macy fought unbelievably hard that night to defy the odds and continue living and her fight has so far paid off. The doctors were able to find a medication (Pamidronate, a type of Bisphosphonate) that is believed can reverse the calcification in the arteries and has shown promising results in other children. Macy has started this treatment, which is said to possibly take 4-6 weeks to start working, but she remains unwell in ICU. Her heart has been severely damaged as a result of the restricted blood flow to the muscle which has serious implications for her in the longer term.

While Jason and Kate are fortunate enough that treatment at the Royal Children’s Hospital is covered, it is possible that with ongoing treatment in the future, not all expenses will be covered. A lot of people have been asking what they could do to help during this tough time, so we decided to set up a fundraiser for those that wish to make a financial contribution as a way to show their support. The donations will go into a fund until the time calls for its use where the first option would be to help Macy in her recovery. A best case scenario includes a long road ahead in hospital and expenses may include specialised equipment, therapy, etc.

As we are unsure at this time exactly what she will need, all funds raised in excess of what is necessary for Macy’s care will be donated. Donations would be made to The Royal Children’s Hospital and/or other organisations involved with GACI or congenital heart disease as a gesture of Macy’s, Kate’s, Jason’s and all supporter’s appreciation for the high level of care provided.

Kate and Jason wish to thank everyone that has already shown tremendous support in many different ways. They have felt a lot of love coming from so many people, which has all been a big help in Macy’s fight. As Macy does… keep smiling.

Faris Alshammaa

5 years ago

$200

Dr. Faris Alshammaa

6 years ago

$300

Melinda Kern

7 years ago

$50

Sharon, James and Anna Evans

7 years ago

$50

Anonymous

7 years ago

$100

Anne Metcalf

7 years ago

$25

allison field

7 years ago

$25

Anonymous

7 years ago

$200

Anonymous

7 years ago

$70

Louise Murray

7 years ago

$50

Debbie, Chris,Kristian & Sofia Hirscher

7 years ago

$100

Anonymous

7 years ago

$50

Heidi & Sam O’Brien

7 years ago

$50

Jonathan Millhouse

7 years ago

$50

Pauline & Chris Butler

7 years ago

$200

Jacinta Sutton

7 years ago

$30

Sonja Gunther

7 years ago

$50

Gail Batstone

7 years ago

$50

Janet Henry

7 years ago

$50

Tomi Crewes

7 years ago

$100

Faris Alshammaa

Keep up the great work, you’re an amazing family

5 years ago

Dr. Faris Alshammaa

All the best, you’re always in our heart and mind. Dr Faris

6 years ago

Moya L

Hi Kate, Jason and Macy, you’ve been in my thoughts. So glad to hear of Macy’s progress. Moya Xo

7 years ago

Louise Murray

Dear Jason and Kate, All our love to you both in supporting Macy through her incredible fight. She is in the best hospital and care. Louise Shane James and Daniel Murray

7 years ago

Debbie, Chris,Kristian & Sofia Hirscher

Such a beautiful little girl and so pleased she is doing so well, long may it continue. Our love and best wishes to you all Love from the Hirscher family in the UK XXX

7 years ago

Nancy Groff

Praying for your sweet baby and your family.

7 years ago

Sonja Gunther

We’re thinking of you all and sending positive thoughts every day. You have one tough little cookie there just wanting to please with her infectious smile. With love Sonny and Gavin

7 years ago

Monique Corbett

Keep fighting Macy xx

7 years ago

Travis Wilkinson

Please let us know if you need any assistance with anything. Stay strong! Travis & Amanda Wilkinson

7 years ago

Barbara Purdie

Kate, I was so saddened to hear this. My heart goes out to you and your family. I hope your RCH family are taking good care of you. Barb

7 years ago

Mark & ben Duscher

All the best with everything. Just recently had our first baby in this breaks my heart!! All the best will be thinking of you guys

7 years ago

Belinda Kostos

Good luck guys and keep being so strong! Xxx

7 years ago

Lore Ristig

I wish all the best for Macy from the bottom of my heart. Tante Lore

7 years ago

Lore Ristig

I wish all the best for Macy from the bottom of my heart. Tante Lore

7 years ago

Lore Ristig

I wish all the best for Macy from the bottom of my heart. Tante Lore

7 years ago

Julius Porlai

Best wishes guys, Anna and I are thinking of your clan.

7 years ago

Janice Farrugia

Kate & Jason, the amount of heart ache must be torturing. You have both been amazing strong parents and I wish you both the best outcome with your beautiful daughter Macy xxx

7 years ago

Joshua Longeri

God bless you guys and you child.

7 years ago

Daniel Rawnsley

$0

Macy’s Fight Against GACI

Ali Griffiths

Daniel Rawnsley

Jason Rawnsley

Kate Rawnsley