Step by Step with Kyra: The First Hurdle

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Brighton, England, United Kingdom

Supporters

25 April 2018 UPDATE:

Kyra had her 12 week post hip and ankle surgery check-up today, and everything is going very well! This wouldn’t have been possible without your financial and emotional support, so thank you. The next stage is getting Kyra’s ankle back to full mobility through physiotherapy so she can wear a prosthetic again and stop using crutches. This is a slow process but she is very strong, has a positive attitude, and is keen to start running around like her friends! We still need to fundraise £95,000 so we can take Kyra to Amercia for leg-lengthening surgery next Spring. We have been granted charity status and moved to a new fundraising website here. Remember you can keep up-to-date with her progress by following us on Twitter or Facebook.

We dream of Kyra walking prosthetic and pain free. You are helping make this dream a reality.

#StepWithKyra

The original campaign started on 06.12.17 is below.

21 February 2018 UPDATE:

Kyra had a very successful operation on 4th February in Israel and we are now back home. Thank you for your incredible support during the first stage in saving Kyra’s leg from amputation, but we still need your help! We are still actively fundraising and accepting donations. If we exceed our target of £58,000, all funds will go towards Kyra’s incredible leg-lengthening next year. We will soon switch to a different fundraising website which we will link below, with our next target of £95,000!

We dream of Kyra walking prosthetic and pain free. You are helping make this dream a reality.

The original campaign started on 06.12.17 is below.

You can help us raise £58,000 in 58 days to save Kyra’s leg – and change her life.

Kyra is six years old, bright, joyful and mischievous. Like any other little girl her age, she loves playing energetically with her friends. She is facing the prospect of having her left leg amputated above the knee, due to a deformity she’s had since birth.

Kyra has Proximal Focal Femoral Deficiency (PFFD), a rare condition affecting fewer than 1 in 50,000 children in the world. This means she has a deformed hip, a shortened left thigh and unstable knee and ankle. As her left leg is so much shorter, she needs to wear a bulky and heavy prosthetic to help her walk, which causes her a lot of pain.

As she gets older, the deformity will become more pronounced, meaning that her prosthetic will be more difficult to manage, and will lead to complications with her hips and spine.

The only option we have here in the UK is for Kyra’s leg to be amputated above the knee in order to get a better-fitting prosthetic. Kyra’s life as an amputee would be a lifetime of disability. Whilst prosthetics enable her to walk, they cause pain and secondary medical problems, plus a lifetime of medical treatment.

The rare nature of PFFD makes it too costly for the NHS to treat a case as severe as Kyra’s. Not only because it requires specialist knowledge, but because it involves costly cutting-edge medical equipment and patients need months of intensive physiotherapy.

But there is another option!

After years of research, we have discovered a doctor with the experience to treat Kyra and save her leg.

Dr Dror Paley, world-renowned orthopaedic surgeon of the Paley Institute in Florida, is the most experienced limb lengthening and deformity correction surgeon in the world. He is an authority in his field, with decades of experience lengthening legs like Kyra’s, with a well-resourced team supporting him. Dr Paley has told us that not only can he lengthen Kyra’s leg, but that she will have a full range of motion – with no future complications – by the age of 16.

Kyra will need a series of lengthening operations over 10 years, but the first step is to correct her hip and ankle in February 2018.

You can help to raise £58,000 for Kyra’s first operation in February.

Your donations will go towards:

We need to raise the money in 58 days. Why the rush?

Dr Paley works in Israel once a year, making operations more affordable for non-US patients. This can only be done on 1st February 2018.

If we delay by a few months we will need to raise an additional £40,000 to take her to the USA later in the year. If we delay by 12 months when Dr Paley is back in Israel, her bones won’t be able to heal in time for the next operation. This important surgery will set the foundation for future lengthenings and any delays now will have a knock-on effect for Kyra’s future.

If somehow we can raise more than our £58,000 target, we will put it towards the first leg lengthening in 2019 which has a fundraising target of £95,000. Treatment will take 3-4 months and we will have to temporarily relocate to America. This will be under a separate fundraising campain….watch this space!

Can you help us raise the funds and allow Kyra to overcome this first hurdle?

Join the conversation on Facebook and get involved with your own fundraising events.

@StepWithKyra

#StepWithKyra

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Elaine Toohig

6 years ago

£100

Anonymous

7 years ago

£1500

Melanie Taylor

7 years ago

£40

robert critchley

7 years ago

£50

Robin Adams

7 years ago

£20

Anonymous

7 years ago

£30

Anonymous

7 years ago

£5

Rebecca Sammy

7 years ago

£20

Sarah Foster

7 years ago

£20

Kathleen Gray

7 years ago

£5

Hayley Ansell

7 years ago

£10

Nicholas Jones

7 years ago

£25

Martina Sabina

7 years ago

£20

Helen Egan

7 years ago

£5

Joanne Topping

7 years ago

£10

Ivana Crockett

7 years ago

£20

Anonymous

7 years ago

£30

Roger ILSLEY

7 years ago

£50

Anonymous

7 years ago

£10

Jo Wilding

7 years ago

£20

Elaine Toohig

Hope all goes well in Florida – we’ll be thinking of you xxxxx

6 years ago

Rima Warrell

Dear friends of Kyra As we look back on the last 12 months, we are thankful for all the financial and emotional support we’ve had from family and friends. We’ve had a rollercoaster of a year. It started with fundraising enough money to get Kyra the urgent surgery in Israel in February to correct her hip and ankle. World-renowned limb specialist Dr Paley performed the operation and it was a great success. Since then Kyra has been doing daily physiotherapy to strengthen her leg muscles and, 9 months later, can finally set her left foot flat on the ground. This is a huge and important achievement for her! We have tried to keep life normal for Kyra and her sisters, but our main focus in 2018 has been fundraising £95,000 for limb-lengthening surgery scheduled for May 2019 with Dr Paley at his specialist hospital in Florida. We completed a sponsored climb of more than 2x the height of Mount Everest, held golf days and sponsored swims, organised raffles, auctions and cake sales, as well as a concert and gala dinner. Our most most gruelling achievement was taking part in Tough Mudder; a 10 mile run through mud and hair-raising obstacles. This event alone raised us £15,000 in donations, taking our fundraising total to over £60,000! We’ve come a long way as a family, and Kyra has amazed us with her continued courage, strength and determination. She has excelled at school earning several Head Teacher awards, and discovered a love for maths and literacy. This is incredible considering she has has to miss school for surgery, physio, and many prosthetic appointments! As we look towards 2019, we’re both excited and nervous. We are confident that the operation in May is the right treatment for Kyra and will be a success, yet we are still nervous as we have a lot of money to raise, and it’s a massive step into the unknown for us. However, with your support and friendship behind us, we know we will get through any adversity. Please do follow our journey on social media which has many photos, or keep updated on our new fundraising page on Just Giving: Just Giving “Step With Kyra” Facebook Group “Step With Kyra” Twitter @StepWithKyra Thank you again and we wish you a Happy New Year. #StepWithKyra

Dear friends of Kyra

As we look back on the last 12 months, we are thankful for all the financial and emotional support we’ve had from family and friends.

We’ve had a rollercoaster of a year. It started with fundraising enough money to get Kyra the urgent surgery in Israel in February to correct her hip and ankle. World-renowned limb specialist Dr Paley performed the operation and it was a great success. Since then Kyra has been doing daily physiotherapy to strengthen her leg muscles and, 9 months later, can finally set her left foot flat on the ground. This is a huge and important achievement for her!

We have tried to keep life normal for Kyra and her sisters, but our main focus in 2018 has been fundraising £95,000 for limb-lengthening surgery scheduled for May 2019 with Dr Paley at his specialist hospital in Florida. We completed a sponsored climb of more than 2x the height of Mount Everest, held golf days and sponsored swims, organised raffles, auctions and cake sales, as well as a concert and gala dinner. Our most most gruelling achievement was taking part in Tough Mudder; a 10 mile run through mud and hair-raising obstacles. This event alone raised us £15,000 in donations, taking our fundraising total to over £60,000!

We’ve come a long way as a family, and Kyra has amazed us with her continued courage, strength and determination. She has excelled at school earning several Head Teacher awards, and discovered a love for maths and literacy. This is incredible considering she has has to miss school for surgery, physio, and many prosthetic appointments!

As we look towards 2019, we’re both excited and nervous. We are confident that the operation in May is the right treatment for Kyra and will be a success, yet we are still nervous as we have a lot of money to raise, and it’s a massive step into the unknown for us. However, with your support and friendship behind us, we know we will get through any adversity.

Please do follow our journey on social media which has many photos, or keep updated on our new fundraising page on Just Giving:

Just Giving “Step With Kyra”

Facebook Group “Step With Kyra”

Twitter @StepWithKyra

Thank you again and we wish you a Happy New Year.

#StepWithKyra

6 years ago

Jo Wilding

My daughter met you at the climbing wall today and loved doing the 100 climbs for Kyra. We all wish you the very best. Jo x

7 years ago

Jo Wilding

My daughter met you at the climbing wall today and loved doing the 100 climbs for Kyra. We all wish you the very best. Jo x

7 years ago

Elaine Tetlow

This is given as an alternative 40th. birthday present for Marc Munier – I am his grandmother (Bama)

7 years ago

Rima Warrell

21 February 2018 UPDATE: Kyra had a very successful operation on 4th February in Israel and we are now back home. Attached are some photos. Thank you for your incredible support during the first stage in saving Kyra’s leg from amputation, but we still need your help! We are still actively fundraising and accepting donations. If we exceed our target of £58,000, all funds will go towards Kyra’s incredible leg-lengthening next year. It was difficult recovering in a foreign hospital so far from home, but the care she received was excellent and we were made to feel very welcome. We had a little bit of time before surgery to explore the area and its sandy beaches, and then 5 days in hospital. She celebrated her 7th birthday in a hospital bed but everyone made a fuss of her, including one of the many hospital clowns. She had a smile on her face for most of our trip, although there were the expected moments of pain, and she missed her family and friends back home (especially her cat!). We have been back home for a week now, and we are all adjusting to life in a wheelchair, but Kyra’s positive ‘can-do’ attitude means she is on very little pain relief and has returned to school full time already! We will soon switch to a different fundraising website which we would like to share with you, with a daunting target of £95,000. Dr Paley believes she is an excellent patient for successfull leg-lengthening and we have made a great start to her treatment thanks to you. We dream of Kyra walking prosthetic and pain free. You are helping make this dream a reality. Thank you once again. Follow Kyra’s journey on Facebook: https://www.facebook.com/groups/stepbystepwithkyra/ and Twitter: @StepWithKyra

21 February 2018 UPDATE:

Kyra had a very successful operation on 4th February in Israel and we are now back home. Attached are some photos. Thank you for your incredible support during the first stage in saving Kyra’s leg from amputation, but we still need your help! We are still actively fundraising and accepting donations. If we exceed our target of £58,000, all funds will go towards Kyra’s incredible leg-lengthening next year.

It was difficult recovering in a foreign hospital so far from home, but the care she received was excellent and we were made to feel very welcome. We had a little bit of time before surgery to explore the area and its sandy beaches, and then 5 days in hospital. She celebrated her 7th birthday in a hospital bed but everyone made a fuss of her, including one of the many hospital clowns. She had a smile on her face for most of our trip, although there were the expected moments of pain, and she missed her family and friends back home (especially her cat!).

We have been back home for a week now, and we are all adjusting to life in a wheelchair, but Kyra’s positive ‘can-do’ attitude means she is on very little pain relief and has returned to school full time already!

We will soon switch to a different fundraising website which we would like to share with you, with a daunting target of £95,000. Dr Paley believes she is an excellent patient for successfull leg-lengthening and we have made a great start to her treatment thanks to you.

We dream of Kyra walking prosthetic and pain free. You are helping make this dream a reality. Thank you once again.

Follow Kyra’s journey on Facebook: https://www.facebook.com/groups/stepbystepwithkyra/

and Twitter: @StepWithKyra

7 years ago

Jacqueline Pomeroy

I heard about Kyra via The Church of the Ascension in Westdene and I am happy to donate £20 to this very worthy cause and I pray that Kyra’s treatment will be successful.

7 years ago

Claire Taylor

Sponsoring Ione & Amber in their fundraising events for their sister. Well done girls. xx

7 years ago

Claire Taylor

Sponsoring Ione & Amber is their fundraising events for their sister. Well done girls. xx

7 years ago

Shannon O’Neill

Glad to see you’re safely back in the UK after your first operation. Here’s something to start you off to the next big step

7 years ago

ilario isoardo

im so happy that I can help towards your goal and I pray that everything goes well for you to put a bigger smile on your face

7 years ago

Emily Goodwin

Good luck Kyra.

7 years ago

Emily Goodwin

Good luck Kyra.

7 years ago

Stuart Levinson

Good Luck Kyra

7 years ago

Edmund Janes

I can only guess what your family is and will continue to have to cope with and my heart goes out to you all. Very best wishes. TJ

7 years ago

Christian Kröninger

Dear Kyra, good luck for your surgery! My little granddaughter with PFFD syndrom was also operated some months ago in Germany. The surgery was a big success and we was happy having chosen Dr.Paley as surgeon . He is indeed a great doctor. Best regards! Christian Kröninger

7 years ago

Jon Card

Nearly there…victory is in sight

7 years ago

John Bowler

Good luck. Hope u reach your target. Heard through the fla

7 years ago

Fiona Beck

Lovely to see you last week Rima. I hope everything goes well for Kyra. Big hug to you all x

7 years ago

Tara Cornford

Best of luck x

7 years ago

Carole Sumer

Good luck Kyra. Marcie in Owls sends her love xxxx

7 years ago

Joel rosenbaum

Good Luck from the Jewish Community

7 years ago

Roslynn Hersch

Wishing Kyra all the very best

7 years ago

Natasza Lentner

Good luck Kyra x

7 years ago

Sarah Peacock

I hope you reach your target, and beautiful Kyra gets all the medical help she needs. Love your old school friend Sarah x

7 years ago

Samuel Wilson

Best of luck Kyra! Thinking of you and your upcoming journey. You’re very lucky to have a mummy and daddy who care for you so much x x x

7 years ago

Kelly Jones

Best of luck with it all Kyra ! You brave wonderful little lady. From The Jones family xxxx

7 years ago

Mark Collins

Keep going guys. It’s really getting there. Wishing you all the very best. Mark x

7 years ago

Lorraine Starr

Wishing this brave little lady all the best. I know you will be very well looked after in Israel.

7 years ago

Lorraine Starr

Wishing this brave little lady all the best. I know you will be very well looked after in Israel.

7 years ago

Angeline Owen

Good luck x

7 years ago

Jonathan Oates

Wishing you all the best. From Family Oates

7 years ago

Helen Bonneville

Good luck Kyra, love Helen Bonneville (friend of Kate Thackwray) xx

7 years ago

Alice Gallagher

Good luck to you all, I hope you reach your target & all goes well xxx

7 years ago

S Lawman

Hope this op goes ahead and Kyra continues to have fab life ahead of her. Sarah Lawman (Jennie’s sister) x

7 years ago

David Cresswell

Dear Kyra, Wishing you and your family nothing but the best! (and if PapaSmurf needs a steady shoulder you tell him to call me 😉 love from, Team Cresswell -x-

7 years ago

Heather Blackmore

Really praying you will make the target ok. Sending lots of love to you Rima and your beautiful family. Love from your old school friend Heather xxx

7 years ago

Geoffrey Short

I saw the appeal in the Jewish Chronicle and send Kyra my very best wishes.

7 years ago

Mike Yeoh

May 2018 be Kyra’s greatest step in the right direction! Warm regards, Mike (Steve Thackwray’s colleague)

7 years ago

Charlotte Copson

Best of luck with everything Kyra and family

7 years ago

Lynn Tulip

Fingers crossed for you Rima and Kyra x

7 years ago

Rima Warrell

What a weekend! Kyra’s story has been featured in several newspapers and websites which has resulted in us now having over 460 donors, with 730 shares. THANK YOU!! Remember you can follow Kyra’s journey on Facebook (https://www.facebook.com/groups/stepbystepwithkyra/) and Twitter (@StepWithKyra).

7 years ago

Fabienne Adler

with love from a Jewish family in the US. Wishing you much success!

7 years ago

Rachel Cohen Yeshurun

Thanks Kyra for letting us step with you! Welcome to Israel and let’s hope you will come back one day as a tourist for some great hiking!

7 years ago

Morrison Zack

You’re in my thoughts, little Kyra.

7 years ago

David Borus

God Bless Kyra and all her family

7 years ago

David Borus

God Bless Kyra and all her family

7 years ago

Ben Lazarus

Good luck – hoping to hear good news.. hope we make you welcome in Israel

7 years ago

Murray Freedman

Lotsa luck Kyra. Hope you get to Israel- it’s lovely – and get your leg sorted. XX

7 years ago

Brenda Silverman

I do hope you achieve success. Good luck to you all, especially Kyre xx

7 years ago

Marc Munier

was aware that we’s spoken a lot about future plans a lot but wanted to do something to get the ball rolling!

7 years ago

Julian Weider

We were really moved to read about Kyra in The JC and hope Kyra’s operation in Israel and the campaign are a great success. We wish her and your family well. Bilha and Julian.

7 years ago

Hannah Rabinowitz

Wishing you a speedy recovery

7 years ago

suzanne aarons

Best wishes and lots of luck

7 years ago

Yonatan Shaked

Lots of luck! 🙂

7 years ago

Lisbet Stene Eggen

We wish you all the best of Luck! Love from Rolf Arne and Lisbet Eggen.

7 years ago

Rachel Betts

Please help and donate to this beautiful little girl ♥️

7 years ago

Anthony Dobson

Best wishes 🙂

7 years ago

liam tucknott

Good Luck

7 years ago

Isla Vaughan

From Isla in Lewes, aged 7

7 years ago

Rima Warrell

Thank you to all our lovely supporters. We wouldn’t have got this far without you. Check out our Facebook Group for a video message from Kyra: https://www.facebook.com/groups/stepbystepwithkyra/

7 years ago

Jo Salmon

Good luck with the fundraising!

7 years ago

Jan Upson

Wishing Kyra all the best for a successful operation. Jan

7 years ago

John Price

All the best!

7 years ago

damian mottram

Good Luck Kyra I hope you reach your target. All the best from Hayley Coughtrey (Ashley – Year 1) & All from Cellular Solutions

7 years ago

Maja & Oliver Delaney

We hope you reach your target. All the best, Maja, Oli, Phoenix & Indigo Delaney xx

7 years ago

cristina osorio

Either way you will be fine Rima with love around you and your determination. But if it’s possible to correct it, go for it x

7 years ago

Alfred Chow Maker of Things

Hope it goes well, Kyra.

7 years ago

Colin & Emma Williams

Lots of Love The Williams Family

7 years ago

paul cox

An absolute pleasure!!!!

7 years ago

paul cox

An absolute pleasure!!!!

7 years ago

Alison Hasan

From a nurse on Courtyard Level 6/7 RSCH. Good luck and best wishes to you all

7 years ago

Laura Santer

Best of luck. Everyone at Westdene school is with you all the way! X

7 years ago

Jessica Bull

We wish you all the very best and have shared Kyra’s page with our donation. Jessica, Gordon, Emma and James Bull x

7 years ago

Trudie Lake

I’m donating my December pocket money. Josselyn Lake

7 years ago

Piers Mandeville

Good luck Kyra

7 years ago

Treena Sanders

I hope you reach your target and Kyra can get the treatment needed. Good luck x

7 years ago

rachel Pratt

Good Luck with your fundraising. From Steve La Bouchardiere and all the team at DesignLSM

7 years ago

Madeleine Wacker

Hope you have a special Christmas love Burlington Bear

7 years ago

Jackie Holden

With love xx

7 years ago

Nicola Hooper

Have a lovely Christmas Kyra, we are thinking of you, lots of love Nicky and Family xxxxx

7 years ago

Samantha Holman

Good luck to this lovely little girl and her family, I am forwarding to our various offices, I really hope the operation is a success and that people feel enough Christmas spirit this season to give generously.

7 years ago

Nadia Bunker

Lots of love from your neighbour and old school friend! Nadia, Martin, Elizeh and Leila Bunker xxxx

7 years ago

Jamila Li Fat Chuen

Wishing you every luck in the world Kyra! Continue being brave, love from Jamila, Sam, Eden, Isis, Lula and Kaia xxxx

7 years ago

Alexander Davidge

Here’s hoping you manage to hit the target and get Kyra the treatment she needs. Good luck!

7 years ago

Cathy Gimpel

All the best. Hope you have a great Christmas (Rubén G Yr 3)

7 years ago

Julia Whelan

Wishing you lots of love as you continue on this journey Kyra. Julie, brian, Lucy and Arran x

7 years ago

Michael Frost

good luck & best wishes..Frost fmily

7 years ago

Kelly Tyler

Wishing you all the best, love babyballet brighton. x

7 years ago

Danielle Woolcott-King (Rachel @ High Sports)

Donated £10 as sponsorship for Rachel Fox at High Sports to climb the wall to raise money for this great cause

7 years ago

Harris Fitch

Sorry couldn’t give more. I wish you the best of luck in getting to Israel and sorting this out!

7 years ago

Victoria Lewis

Sending lots of love and hugs from Sydney, we can’t wait to have a playdate with you Kyra when we are back in the UK next summer. Love, Phillip, Victoria, Arabella, Harrietta xxx

7 years ago

Lee Coughtrey

Good luck Kyra & to you all in the new year with your Target X

7 years ago

Gemma Gill

Good luck Kyra. I will also be sending my children along with a donation on the dress down day. Love from Mrs Gill

7 years ago

Malcolm Bryce-Stafford

Good luck guys. Monumental effort. Anything I can do to support let me know.

7 years ago

Sally Cosham

I really hope you reach your target for Kyra. X

7 years ago

Rima Warrell

Wow. What an incredible few days. We have already raised 10% of our goal in such a short amount of time. Thank you so much for your donation and every share of our page. It means a lot to us that people from all around the world have been touched by Kyra’s story. We still have a long way to go but with fantastic supporters like you, we believe we can do it. Remember to keep in touch through our Facebook group here or through Twitter here. Rima and Neil

Wow. What an incredible few days. We have already raised 10% of our goal in such a short amount of time. Thank you so much for your donation and every share of our page. It means a lot to us that people from all around the world have been touched by Kyra’s story. We still have a long way to go but with fantastic supporters like you, we believe we can do it.

Remember to keep in touch through our Facebook group here

or through Twitter here.

Rima and Neil

7 years ago

Rhianna Batchelor

Good luck Kyra, hope all goes well for you!!xx

7 years ago

matthew hamilton

Hi, Really good luck with this Kyra. And a Happy Xmas to you and your family. Love Toby (friend of Josh/ Dani – yr 2) x

7 years ago

Pedro Henrique Moraes Vilela

Get well soon, Kyra

7 years ago

Joanna Coad

Good luck! Joanna & Mark

7 years ago

Liam Donoghue

Fingers crossed for you Kyra.

7 years ago

Sara Shuman

Sending love from the Londoners! xx

7 years ago

Marie Fieldhouse

Sending lots of love and support to you all for your fundraising and Kyra’s operation xxx

7 years ago

Lauren Lloyd

Good luck with your fundraising. We are all here to support you x

7 years ago

Daniel Anderson

£3932

Lexi and Amber

£680

Mel Taylor

£491

Lucy Newman & Cloe Manaia

£415

Esther Cropper

£316

Rima Warrell