Support Delaney’s Fight Against Mastocytosis

Story

We’re Tired. We’re Scared. And We Need Help for Delaney.

Hi. We’re Breanna and Marc, and we’re the parents of Delaney—our sweet, snuggly, smart, 19-month-old baby girl who lights up the world with her smile even while fighting something we never could’ve imagined.

In December 2024, Delaney was diagnosed with a rare white blood cell disorder called mastocytosis. Her body produces too many mast cells—these are the cells that trigger allergic reactions—and they build up in her skin, her bone marrow, her organs, and her GI system. It causes constant discomfort, scary symptoms, and a daily balancing act of medications, appointments, and fear.

We’ve kept this mostly to ourselves. Other than Breanna’s grandparents, we haven’t told anyone. We thought we could keep our heads down and just push through it quietly. But the truth is—we can’t anymore. We’re at the point where the emotional and financial strain is too much. We need help.

Delaney is under the care of:
* A hematologist-oncologist, who’s monitoring her disease and may need to do a bone marrow biopsy
* An allergist, because she’s at risk of going into anaphylaxis from any unexpected trigger
* A gastroenterologist, for chronic GI issues that cause her pain and discomfort nearly every day
* A dermatologist, to treat the skin symptoms that flare constantly
* Her pediatrician, who’s been helping coordinate her complex care

In the next few weeks, she’s scheduled for a flexible sigmoidoscopy and endoscopy—invasive procedures that are tough for anyone, let alone a toddler. At her last ultrasound, they also found gallstones, which are being watched closely but may need surgery if they become symptomatic.

Delaney is on a rotating mix of prescription and over-the-counter meds just to keep her stable. Most days, she’s still smiling. She loves playing with her big sister Elsie, snuggling up with her dad (she is a total daddy’s girl), dancing to Ms. Rachel, and running around after our cats. But there are days she’s miserable, and it’s heartbreaking to watch her suffer, knowing there’s only so much we can do.

Breanna works in revenue cycle management—she sees firsthand how broken our system is, how quickly medical costs can drown families. She’s seen it from the inside. And she’s lived it before—she lost her aunt to acute myeloid leukemia in 2013. Watching the toll it took on her family financially and emotionally was scarring. Now we’re living that same nightmare with our daughter.

We have insurance through Breanna’s job. But it’s a high-deductible plan, and the out-of-pocket costs are crushing us: co-pays, tests, prescriptions, time off work. Marc has had job instability since 2020, and we do not qualify for government aid. We fall in that terrible in-between—too much income to get help, not enough to stay ahead of what Delaney needs.
We are exhausted. And scared. We’re doing everything we can to hold it together, but we can’t do this on our own anymore. That’s why we’re asking—begging—for help.

We’re trying to raise 25,000 to cover:
* Out-of-pocket medical expenses
* Specialist visits, testing, and potential surgery or bone marrow biopsy
* Medication costs that aren’t fully covered
* Lost income from missed work
* Basic stability so we can care for our family without going under

If you can give anything at all—please know it means the world. And if you can’t, just sharing this or sending a kind word is more than enough.
This is the hardest thing we’ve ever written. We never imagined we’d be here, putting our story out like this. But we’d do anything to take care of our baby girl. Anything. And right now, this is what she needs.

Thank you for reading. For caring. For helping us keep going.

With everything we have,
Breanna & Marc

LLS Fact Sheet Mastocytosis

Organizers :

Breanna Combs is organizing this fundraiser.